Worldwide Successful Pediatric Nurse-Led Models of Care

Preface
References
Contents
Nurse-Led Models of Care for Infants, Children, Youth, and Families: Introduction and Overview
Introduction
Neonates, Infants, and Early Childhood
Broad Range of Children, Youth and Young Adults
Theory-Driven Approaches to Care
Staff Initiative
Conclusion
References
The Social-Ecological Theory of Child Development: A Framework for Nurse-Led Initiatives and Models of Care
Social-Ecological Theory
A Need for Change
Applying Social-Ecological Theory to Care
Application to Practice, Training, and Research
Conclusions
References
Baby Steps: Improving the Transition from Hospital to Home for Neonatal Patients and Caregivers Through a Nurse-Led Telehealth Program
Introduction
Background Information
Why Develop Baby Steps?
Process to Develop the Baby Steps Service
Theoretical Framework: Theory of Transition (Meleis)
Description of Nurse-Led Baby Steps Model
Organizational Components of Baby Steps Involve Several Interprofessional Teams
Description of the Services Provided
Role/Responsibilities of Team Members/Position Requirements of Those Involved with the Nurse-Led Model
Methods of Evaluation
Challenges and Facilitators
Challenges
Facilitators
Financial Challenges and Opportunities
Service Adjustments Made
Lessons Learned
Future Implications for Clinical Practice and Research
Conclusion
Useful Resources
Appendix: Baby Steps Program Brochure
References
Canadian Nurse Practitioner-Led Pediatric Rehabilitation Complex Care Program
Introduction
Background
NP Scope of Practice in Ontario
The Children’s Rehabilitation Hospital
Population Description (Children with Medical Complexity)
Nurse Practitioner-Led Model
Model Development
Gaps and Challenges with the Pre-existing Model of Care
Description of the New Model of Care
Collaboration with Physician Partners
Collaboration with the Interprofessional Team
Provincial Framework Complex Care for Kids Ontario (CCKO)
Evaluation
Challenges and Facilitators
Challenges
Facilitators
Service Adjustments
Improvements for Access to Care
Lessons Learned
Building Relationships
Approach to Care of CMC
Future Implications for Clinical Practice and Research
NP as Most Responsible Provider (MRP)
Transition to Adulthood for Complex Care Population
Evaluation of Long-Term Impact
Conclusion
Useful Resources
References
Leveraging a Professional Nursing Organization to Create an Antitrafficking Care Model
Introduction
Background
Human Trafficking: A Public Health Threat
Target Setting: Professional Nursing Organizations
Impetus for Model Development
Theoretical and Conceptual Frameworks
The Alliance for Children in Trafficking
Standard Setting for Education and Policy
Replication Through the ACT Advocates Program
Dissemination Through Contributions to Scientific Literature
Evaluation
Challenges and Facilitators
Challenges
Facilitators
Financial Support and Sustaining Strategies
Service Adjustments
National Workgroup Development
Lessons Learned
Health Equity
Global Health Perspective
Importance of Partnerships
Calls to Action
Future Implications for Clinical Practice and Research
Suicide Prevention and Foster Care
Conclusion
The Role of Professional Nursing Organizations
Useful Resources
References
Evolution of a Complex and Home Care Program for Children with Chronic Diseases
Introduction
Background
Target Population and Setting
Process Undertaken to Implement This Model
Workload Projection
Budget Planning
Home Medical Equipment and Consumables
Caregiver Training
Care Plans
Postdischarge Care
Theoretical Framework
Shared Care
Team-Based Care
Joint Accountability
Electronic Care Plans
Organizational Component
Service Components of CCHS
Caregiver Training and Assessment
Medical, Psychosocial and Financial Assessment
Home Environment Assessment
Equipment and Consumables Assessment and Procurement
Care Planning and Coordination
Outpatient Clinics
Home Visits
Roles of the CCHS Home Care Nurse
Patient Assessment
Caregiver Training and Assessment
Medical Equipment Procurement and Consumable Supply
Discharge Planning
Home Visits and Tele-Consultations
Training and Collaboration with Health-Care Providers
Liaison with Medical Equipment Vendors
Recruitment of Home Care Nurses
Methods of Evaluation
Challenges
Lack of Community Facilities for Long-Term and Respite Care
Responsible Care of Medical Equipment
Funding
Caregiver’s Psychological and Physical Health
Facilitators
Collaboration
Philanthropic Funding
Caregiver Support Programs (Psychosocial Counselling and Respite Care)
Service Adjustments Made
Medical Equipment Procurement and Maintenance
Funding
Transition to Adult Care
Lessons Learnt
Future Implications for Clinical Practice and Research
Conclusion
References
Affirming and Empowering Kids: Creating an Independent and Comprehensive Gender-Affirming Health-Care Center
An Introduction to Transhealth
Background
Transgender and Gender-Diverse Kids Are Resilient and Deserve More
Transhealth Was Developed to Respond to Community Need
Description of the Nurse-Led Transhealth Model
Challenges and Facilitators
Service Adjustments Made
Lessons Learned
Future Implications
Conclusions
Useful Resources
References
Caring for Patient on Extracorporeal Membrane Oxygenation (ECMO) in the Pediatric Intensive Care Setting
Introduction
Background
Process Undertaken to Implement the Model
Acquiring ECMO Knowledge and Skills from Established ECMO Centers
KKH Pediatric-Neonatal ECMO Committee
Working with Stakeholders
Recruitment and Training of ECMO Specialist Nurses
Theoretical Framework
Organizational Component
Service Components
ECMO Initiation
ECMO Maintenance
Post-ECMO Management
Roles of the Nurses
ECMO Nurse Coordinator
ECMO Specialist Nurse
Bedside Nurse
Multidisciplinary Team
Training for ECMO Specialist Nurses
Methods of Evaluation
Challenges and Facilitators
Address Financing/Reimbursement
Service Adjustments Made
Lessons Learned
Future Implications
Conclusion
References
Transitioning from Pediatric to Adult Care in Sickle Cell Disease: An Innovative Nurse-Led Model
Introduction
Background
Process
Theoretical Framework
Nurse-Led Module Description
Methods of Evaluation
Challenges and Facilitators
Service Adjustments Made
Lessons Learned
Future Implications for Clinical Practice and Research
Conclusion
Useful Resources/Websites
References
The Sierra Leone National ETAT+ Programme: Delivering Nurse-Led Emergency Paediatric Care
Introduction
Background
Need for the Model and the Target Population
Impetus for the Development of This Model
The Process Undertaken to Develop and Implement the Model
Theoretical Framework
Description
Organizational Components
Services
Team Members
Evaluation
Challenges and Facilitators
Challenges
Facilitators
Lessons Learned
Future Implications for Clinical Practice and Research
Conclusion
Useful Resources
References
Interactional Model of Caring for Families of Children with Chronic Conditions
Introduction
Background
Description of the Nurse-Led Model
Theoretical Foundations of the Model
The Interactional Family Care Model (IFCM) Dimensions
IFCM Assumptions
IFCM Practice
IFCM Service Components
The Family Assessment Process
Interventions with the Family
Strategies for Intervening with the Family
IFCM Outcomes
IFCM Team Members
Challenges and Facilitators
Lessons Learned
Service Adjustments Made
Future Implications for Clinical Practice and Research
Conclusion
Useful Resources
References
From Patient Studies to a Hospital-Wide Initiative: A Mindfulness Journey
Introduction
Background
Theoretical Model and Conceptual Framework
Organizational Components
Service Components
Intervention
Team Members
Methods of Evaluation
IRB and Ethical Approval Process
Challenges
Facilitators
Service Adjustments Made
Lessons Learned
Future Implications
Conclusion
Useful Resources
References
Nurse-Led Service Models: Lessons Learned Over 25 Years
Overview of Past and Ongoing Nurse-Led Healthcare Transition Models of Care
Early Beginnings
Movin’ On Up
Future Development in Intellectual Disabilities and Developmental Disabilities
Lessons Learned
Conclusion
References
A Paediatric Eczema Shared Care Model
Introduction
Background
Overview of the Need for an Eczema Model/Target Population/Setting
Impetus for Development of the Eczema Model
The Process Undertaken to Develop and Implement the Eczema Model
Laying the Groundwork for the Eczema Model
Collaboration Efforts Involved with Eczema Model Planning
Collaboration, Training and Resource Development
Eczema Resources for Health Professionals and Consumers
Community Webinars and Seminars
Eczema School Kit
Primary Care Decision-Making Algorithm and GP Management Plan
Theoretical Framework
Components of the Shared Care Model for Allergic Diseases
Collaborative Pharmacy Eczema Model of Care
Description of the Nurse-Led Model
Organisational Components
Components of the Service Model
Position Requirements of Those Involved with the NP-Led Model
Methods of Evaluation
Challenges and Facilitators
Challenges
Facilitators
Address Financing/Reimbursement
Service Adjustments Made
Lessons Learned
Future Implications for Clinical Practice and Research
Conclusion
Useful Resources
Appendix 1: Eczema Decision-Making Algorithm
Appendix 2: GP Management Plan
Appendix 3: Advisory Group Members
Collaborative Pharmacy Eczema Model of Care Expert Advisory Group (Alphabetical by Surname)
Multidisciplinary Expert Advisory Group (Alphabetical by Surname)
References
Breatheasy: A Nurse-Led ‘Care Through Family’ Service Model
Introduction
Background Information
Infant and Child Mortality and Morbidity Shifts
Children with a Tracheostomy
Care in Lower-Resourced Settings
The Contextual Lens
A Solution-Focused Lens
Researching Clinical Practice
Description of the Breatheasy Programme
The Service Model
Staffing
Inter- and Multidisciplinary Teamwork
Preserving the Mother–Child Pair
Enabling Continuous Presence
Belief and Trust
Psychological Support and Empathy
Mothers as a Capable Resource
Sharing Knowledge
Factors That Support Care Through Family
Daily Changing of the Tracheostomy Tube
Resources and Inputs
A Competent Team of Caregivers
A Safe Place
Challenges and Service Adjustments Made
Challenges
Service Adjustments
Lessons Learned
The Care Through Family Self-Assessment Tool
Future Implications for Clinical Practice and Research
Conclusion
Useful Resources
Appendix
References
Leading a Nurse Practitioner-Designed Newborn Circumcision Clinic
Introduction
Background Information
NCC Needs Assessment
Target Population and Setting
Designing and Implementing the NCC
Theoretical Framework
Description of the NCC
Organizational Components
Services Components of the Service Model
Description of the Services Provided
Setting of the Model/Wherein Services Provided
Team Member’s Roles and Responsibilities
Methods of Evaluation
Challenges and Opportunities
Family Feedback Guides Service Delivery Adjustments
Lessons Learned
Future Implications for Clinical Practice and Research
Conclusion
Useful Resources
References
Analysis of Nurse-Led Models Heath Care and Implications for Practice, Research, Education, and Policymaking
Introduction
Responsive to Healthcare Needs
Theoretical Frameworks
Sustainability
Research and Quality Improvement Efforts
Evaluation Measures
Conclusions
References