This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to opsoclonus myoclonus (also ), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on opsoclonus myoclonus. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.
Author(s): Icon Health Publications
Year: 2002
Language: English
Pages: 104
Overview......Page 11
Scope......Page 13
Moving Forward......Page 14
PART I: THE ESSENTIALS......Page 17
Overview......Page 19
What Is Opsoclonus Myoclonus?......Page 20
For More Information......Page 21
More Guideline Sources......Page 22
Vocabulary Builder......Page 24
Associations and Opsoclonus Myoclonus......Page 27
Finding More Associations......Page 30
Finding Doctors......Page 32
Finding a Neurologist......Page 33
Working with Your Doctor......Page 34
Vocabulary Builder......Page 36
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL......Page 37
Federally-Funded Research on Opsoclonus Myoclonus......Page 39
The National Library of Medicine: PubMed......Page 41
Vocabulary Builder......Page 42
The National Library of Medicine Book Index......Page 45
General Home References......Page 47
Vocabulary Builder......Page 48
Bibliography: Multimedia on Opsoclonus Myoclonus......Page 49
Vocabulary Builder......Page 50
PART III. APPENDICES......Page 51
Overview......Page 53
Your Medications: The Basics......Page 54
Commercial Databases......Page 56
Contraindications and Interactions (Hidden Dangers)......Page 57
A Final Warning......Page 58
General References......Page 59
Overview......Page 61
Food and Nutrition: General Principles......Page 62
Finding Studies on Opsoclonus Myoclonus......Page 66
Federal Resources on Nutrition......Page 67
Vocabulary Builder......Page 68
Preparation......Page 71
Medical Libraries Open to the Public......Page 72
Your Rights as a Patient......Page 79
Patient Responsibilities......Page 83
Choosing an Insurance Plan......Page 84
Medicare and Medicaid......Page 86
NORD's Medication Assistance Programs......Page 89
Additional Resources......Page 90
ONLINE GLOSSARIES......Page 91
Online Dictionary Directories......Page 92
OPSOCLONUS MYOCLONUS GLOSSARY......Page 93
General Dictionaries and Glossaries......Page 97
INDEX......Page 99
