The Official Parent's Sourcebook on Sturge-Weber Syndrome: A Revised and Updated Directory for the Internet Age

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to sturge-weber syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on sturge-weber syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Sturge-Weber Syndrome: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Sturge-Weber Syndrome; Chapter 4. Books on Sturge-Weber Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; STURGE-WEBER SYNDROME GLOSSARY; INDEX. Related topics include: Dimitri Disease, Encephalofacial Angiomatosis, Encephalotrigeminal angiomatosis, Leptomeningeal Angiomatosis, Meningeal Capillary Angiomatosis, Sturge-Kalischer-Weber Syndrome, Sturge-Weber Phakomatosis, Sturge-Weber-Dimitri syndrome.