This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to septo-optic dysplasia, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on septo-optic dysplasia. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Septo-Optic Dysplasia: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Septo-Optic Dysplasia; Chapter 4. Books on Septo-Optic Dysplasia; Chapter 5. Multimedia on Septo-Optic Dysplasia; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; SEPTO-OPTIC DYSPLASIA GLOSSARY; INDEX. Related topics include: De Morsier Syndrome.
Author(s): Icon Health Publications
Year: 2002
Language: English
Pages: 124
Overview......Page 10
Scope......Page 12
Moving Forward......Page 13
PART I: THE ESSENTIALS......Page 16
Overview......Page 18
What Is Septo-Optic Dysplasia?......Page 19
For More Information......Page 20
More Guideline Sources......Page 22
Vocabulary Builder......Page 24
Overview......Page 26
Finding Doctors......Page 28
Finding a Neurologist......Page 29
Working with Your Child's Doctor......Page 30
Broader Health-Related Resources......Page 31
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL......Page 32
Federally-Funded Research on Septo-Optic Dysplasia......Page 34
The National Library of Medicine: PubMed......Page 41
Vocabulary Builder......Page 42
The National Library of Medicine Book Index......Page 48
General Home References......Page 49
Vocabulary Builder......Page 50
Bibliography: Multimedia on Septo-Optic Dysplasia......Page 52
Vocabulary Builder......Page 53
PART III. APPENDICES......Page 56
Overview......Page 58
Your Child's Medications: The Basics......Page 59
Learning More about Your Child's Medications......Page 60
Commercial Databases......Page 61
Contraindications and Interactions (Hidden Dangers)......Page 62
A Final Warning......Page 63
General References......Page 64
Overview......Page 66
Food and Nutrition: General Principles......Page 67
Finding Studies on Septo-Optic Dysplasia......Page 71
Federal Resources on Nutrition......Page 72
Additional Web Resources......Page 73
Preparation......Page 74
Medical Libraries Open to the Public......Page 75
Your Child's Rights as a Patient......Page 82
Parent Responsibilities......Page 86
Choosing an Insurance Plan......Page 87
NORD's Medication Assistance Programs......Page 89
Additional Resources......Page 90
Vocabulary Builder......Page 91
ONLINE GLOSSARIES......Page 92
Online Dictionary Directories......Page 93
SEPTO-OPTIC DYSPLASIA GLOSSARY......Page 94
General Dictionaries and Glossaries......Page 102
INDEX......Page 104
