The Official Parent's Sourcebook on Mitochondrial Myopathies: A Revised and Updated Directory for the Internet Age

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to mitochondrial myopathies, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on mitochondrial myopathies. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Mitochondrial Myopathies: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Mitochondrial Myopathies; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Mitochondrial Myopathies; Chapter 5. Books on Mitochondrial Myopathies; Chapter 6. Multimedia on Mitochondrial Myopathies; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; ONLINE GLOSSARIES; MITOCHONDRIAL MYOPATHIES GLOSSARY; INDEX. Related topics include: Chronic Progressive External Ophthalmoplegia and Myopathy, Chronic Progressive External Ophthalmoplegia with Ragged Red Fibers, Fukuhara Syndrome, hereditary external ophthalmoplegia, Kearns-Sayre Disease, Mitochondrial Cytopathy, Kearn-Sayre Type, Mitochondrial Myopathy, Encephalopathy, Lactic Acidosis, Stroke-Like Episod, Myoclonic Epilepsy, Myoclonic Progressive Familial Epilepsy, Myoclonus Epilepsy.