Routledge Handbook of Disability Studies

Cover
Half Title
Title Page
Copyright Page
Dedication
Table of Contents
List of illustrations
List of contributors
PART I: Theorising disability
1. Disability studies: Into the multidisciplinary future
Structure of the book
Part 1: Theorising disability
Part 2: disablement, disablism, and impairment effects
Part 3: social policy and disability: health, personal assistance, employment, and education
Part 4: disability studies and interdisciplinarity
Part 5: contextualising the disability experience
References
2. Understanding the social model of disability: Past, present and future
Introduction
The origins of the social model
The arrival and impact of the social model
The social model and its discontents
Final word
References
3. Critical disability studies: Rethinking the conventions for the age of postmodernity
Notes
References
4. Minority model: From liberal to neoliberal futures of disability
Introduction: from liberal to neoliberal futures of disability
The micro-technologies of normalisation
Incapacity: the new social standard
Ablenationalism: model minority normativities
Conclusion: something other than becoming in order to be fixed
References
5. The ICF and its relationship to disability studies
Introduction
Disability definitions, models and classifications
WHO, health professionals and the ICF
ICF classifications
ICF conceptualisation
The ICF and the CRPD
The ICF and disability studies
Notes
References
6. Disability and human rights
Human rights prior to the disability Convention
The UN Convention on the Rights of Persons with Disabilities
Key themes from the CRPD
Paradoxes of rights
Note
References
7. Invalidating emotions in the non-disabled imaginary: Fear, pity and disgust
Introduction
Fear
Pity
Disgust
Conclusion
References
8. Psycho-emotional disablism: The missing link?
Introduction
Psycho-emotional disablism
Direct psycho-emotional disablism
Indirect psycho-emotional disablism
Phenomenology and the dys-appearing body
The ‘dys-appearing’ body: embodied disablism and/or sociology
of impairment?
Internalised oppression unpacked
(Re)producing the disabled subject
(Re)producing the ‘normal’ subject
The role of impairment in experiences of psycho-emotional disablism
Conclusion
References
9. The biopolitics of disability and animality in Harriet McBryde Johnson
Introduction
Humans and other animals
Coalition building and advocacy
Essentialism and valuation hierarchies
Notes
References
10. Agency, structure and emancipatory research: Researching disablement and impairment
Introduction
Background: researching disability
Emancipatory research
Participatory research
Some problems with disability research
Change, development and improvement
Agency-structure problem
Critical realism: an alternative approach to disability research
Note
References
PART II: Disablement, disablism and impairment effects
11. Deaf identities in disability studies
The contested idea of disability identity
Deafness and why a D/deaf identity might be special
The deaf community: boundaries and diversity
Technology and D/deaf identity
Deaf and/or disabled?
Reproductive technologies and deaf identity
The ethical importance of self-definition
Concluding comments
Notes
References
12. Theorising the position of people with learning difficulties within disability studies: Progress and pitfalls
Introduction
How far and in what ways does the social model account for the experiences of people with learning difficulties?
Who should theorise about ‘learning disability’ – and how?
Impairment: the contested issue
Summary and conclusions
Future directions of travel
Notes
Acknowledgements
References
13. Long-term disabling conditions and disability theory
Introduction
The sociology of long-term disabling conditions (chronic illness)
The interactionist approach
Key themes within a sociological understanding of chronic illness
Uncertain and unpredictable futures
Impact on social relations
Assaults on self-image and self esteem
Locating chronc illness in disability studies
Challenging questions
Empowerment, diabetes and the medicalisation and state sponsorship of
‘anti-oppression’ measures
Batten disease and the primacy of the biological
Future directions and collaborations
References
14. Critical realism as the fourth ‘wave’: Deepening and broadening social perspectives on mental distress
Introduction
Why and how social research explores mental distress
The development and impact of survivor-led research
The fourth ‘wave’: critical realism
Section summary
Using critical realism to enhance primary research in mental distress: an
empirical example
Conclusion: next steps for critical realism, mental distress and disability studies
Acknowledgements
References
15. It’s about time!: Understanding the experience of speech impairment
Time and the social model of disability: a critique
Speech impairment and communicative capital
Conclusion
References
16. Blindness/sightedness: Disability studies and the defiance of di-vision
Introduction
Di-visions in knowledge
Disability studies and vision impairment
The moral explanation
The medical/individual/psychological explanation
The social and learned explanation
Critical explanations
We all come to know blindness and sightedness
Languaging blindness
Emphasising relationality
Conclusion
References
PART III: Social policy and disability: Health, personal assistance, employment and education
17. Social suffering in the neoliberal age: Surplusisty and the partially disabled subject
Introduction
Neoliberalism and its reimagining of disability
Partiality and the affective politics of neoliberal invalidation
Partiality and neoliberal classificatory assessment regimes
Contesting partiality and stigmatisation
Conclusion
Acknowledgements
References
18. Disabled people and employment: A UK perspective
Introduction
Disabled people in the labour market
Tackling employment exclusion
Where are we now?
The future of work
References
19. Disability studies, inclusive education and exclusion
The worst of times
Special education and the progress of collective indifference
Bestowed understandings
Professional knowledge and interest
Education reform and disability studies in education
Establishing authenticity
Educating teachers
Building community
Conclusion
Notes
Bibliography
20. Independent living and the failure of governments
Introduction
Activism and independent living: the emergence of an agenda for change
Independent living by the back door?: Facilitating support through
social security and the rise and fall of the Independent Living Fund
Anti-social benefits: the shift from the Disability Living Allowance to the Personal Independence Payment
Universal Credit
Care markets and carving out routes to independence
Cash for care: independent living in the era of direct payments and the personalisation of social care
Isolation and independent living: taking the social out of social care
Discussion and concluding comments
References
21. Diagnosis as social practice and the possibility of interruption
Introduction
Developing a diagnostic construct
Diagnosis as social process
Diagnosis as political product
Interrupting diagnosis
References
22. Boundary maintenance: Exploring the intersections of disability and migration
Introduction
A mobile world: migration in the twenty-first century
Citizens of the world? Exploring intersections of disability, race and migration
No entry: disability and immigration policy
Gaining entry, but no access? Realising and practising rights
Concluding comments
Acknowledgement
References
23. Disability in developing countries
Introduction
Disability from the global to the local
Barriers to participation
Ways forward
Conclusion
References
PART IV: Disability studies and interdisciplinarity
24. The metanarrative of disability: Social encounters, cultural representation and critical avoidance
The emergence of cultural disability studies
Does the study of culture deepen our understanding of disability?
Does the study of disability enrich our understanding of culture?
Conclusion
References
25. What can philosophy tell us about disability?
Introduction: what can we tell you about philosophy and its uses in understanding disability?
Philosophical ontology and disability theory
Philosophical ethics and the moral significance of disability
Political philosophy and disability policy
Conclusion: the value of philosophy for disability
References
26. The psychology of disability
Introduction
A functionalist psychology of disability: mainstream psychological disability studies
Study 1: abstract
A phenomenological psychology of disability: critical psychological disability studies
Study 2
Conclusion
References
27. Challenging the impairment/disability divide: Disability history and the social model of disability
The social creation of impairment
Lest we become historians of medicine: the challenges of challenging the impairment/disability divide
Conclusion
References
28. Disability, sport and physical activity
Disability sport
Disability and physical activity
Possible directions of travel
References
Weblinks
29. We have never been able-bodied: Thoughts on dis/ability and subjectivity from science and technology studies
From determinist essentialism through social constructivism to post-modernity
From the individual to relations
Embodied technologies or technologised bodies?
Do assistive technologies have politics?
Disability, biopolitics and the state
Dis/abling borders or the apheresis of the subject
A final word
Notes
References
PART V: Contextualising the disability experience
30. Feminism and disability: A cartography of multiplicity
Introduction
Early contributions and debates
Key concepts and debates in feminist disability studies
Diverse bodies of knowledge
Possibilities and challenges
Conclusion
References
31. Disability and sexuality
Introduction
A note on theory
Background
Research thus far
Challenging questions
Future directions
Attention to enabling environments and structural barriers
Conclusion
References
32. Race/ethnicity and disability studies: Towards an explicitly intersectional approach
Where have we been on race/ethnicity and disability?
Culture, disability and service provision
Multiple and intersecting identities result in multiple and intersecting oppressions
Responding to multiple, intersecting oppressions
Notes
Bibliography
33. Mothering and disability: From eugenics to newgenics
The underlying issues: disability, mothering, eugenics and newgenics
The underlying issues: gender, structure and disablism
Challenges: policies and programming for disabled mothers
Erasing and undermining motherhood in disability research and policy
Future considerations: bringing mothers in
References
34. Understanding disabled families: Replacing tales of burden and resilience with ties of interdependency
Introduction
Disability as a burden and resilient families
The search for cure or therapy
Care and interdependency
Conclusion
References
Weblinks
35. ‘I hope he dies before me’: Unravelling the debates about ageing and people with intellectual disability
Middle-aged – or prematurely old?
Possibilities of middle age
Old age – double jeopardy
Reformulating old age
Adapting services to age-associated change
Ageing place in group homes: an exemplar issue
Concluding comments
References
Index