In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Marfan syndrome is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so.
Author(s): Philip M. Parker
Year: 2007
Language: English
Pages: 182
FORWARD......Page 10
What Is Marfan Syndrome?......Page 12
What Genes Are Related to Marfan Syndrome?......Page 13
Where Can I Find Additional Information about Marfan Syndrome?......Page 14
What Is the Official Name of the FBN1 Gene?......Page 16
Where Is the FBN1 Gene Located?......Page 17
References......Page 18
What Conditions Are Related to the TGFBR2 Gene?......Page 19
Where Is the TGFBR2 Gene Located?......Page 20
Federally Funded Research on Marfan Syndrome......Page 21
The National Library of Medicine: PubMed......Page 31
National Center for Complementary and Alternative Medicine......Page 76
Additional Web Resources......Page 78
General References......Page 79
Book Summaries: Online Booksellers......Page 80
The Basics: Genes and How They Work......Page 83
Genetic Mutations and Health......Page 94
Inheriting Genetic Conditions......Page 100
Genetic Consultation......Page 108
Genetic Testing......Page 110
Gene Therapy......Page 116
The Human Genome Project and Genomic Research......Page 119
NIH Guidelines......Page 122
NIH Databases......Page 123
Other Commercial Databases......Page 126
Patient Guideline Sources......Page 127
Finding Associations......Page 129
Resources for Patients and Families......Page 130
ONLINE GLOSSARIES......Page 131
Online Dictionary Directories......Page 132
MARFAN SYNDROME DICTIONARY......Page 133
INDEX......Page 172
