Making Genetics and Genomics Policy in Britain: From Personal to Population Health

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This important book traces the history of genetics and genomics policy in Britain. Detailing the scientific, political, and economic factors that have informed policy and the development of new health services, the book highlights the particular importance of the field of Public Health Genomics. Although focused primarily on events in Britain, the book reveals a number of globally applicable lessons. The authors explain how and why Public Health Genomics developed and the ways in which genetics and genomics have come to have a central place in many important health debates. Consideration of their ethical, social, and legal implications and ensuring that new services that are equitable, appropriate, and well-targeted will be central to effective health planning and policymaking in future. The book features Interviews with leading individuals who were intimately involved in the development of genetics and genomics policy and Public Health Genomics. Insights from experts who participated in a pair of 'witness seminars'. Historical analysis exploiting a wide range of primary sources. Written in a clear and accessible style, this book will be of interest to those involved in the research and practice of genetics, genomics, bioethics, and population health, but also to NHS staff, policymakers, politicians, and the public. It will also be valuable supplementary reading for students of the History of Medicine and Health, Public Health, and Biomedical Sciences.

Author(s): Philip Begley, Sally Sheard
Publisher: Routledge
Year: 2022

Language: English
Pages: 178
City: London

Cover
Half Title
Title Page
Copyright Page
Contents
Figures
Acknowledgements
Introduction
Revolutions
Approaches
Definitions
Structure
Notes
Bibliography
1. Origins
The History of Genetics
The Development of Medical Genetics
The Arrival of Genomics
The Development of Public Health
Genetics and Public Health
Official Interest in Genetics
Genetics, Ethics, and Patients
The Cambridge Connection
Notes
Bibliography
2. Foundations
Influential Acronyms
A Policy Foothold
A Lonely Voice in the Wilderness: Genetics Meets Public Health
Notes
Bibliography
3. Progress
Spreading the Word
Mechanisms of Change
Securing the Future
Notes
Bibliography
4. New Directions
The Bellagio Initiative
New Independence
New Strategies
100,000 Genomes
Notes
Bibliography
5. Conclusion
Notes
Bibliography
Index