In this thought-provoking book, Jan Walmsley and Kelley Johnson discuss participative approaches to research and provide an up-to-date account of inclusive practice with individuals with learning disabilities. Drawing on evidence from two major studies, they explain how lessons learnt from inclusive research in the learning disability field are applicable to others working with marginalized groups. The authors examine the origins and the process of inclusive research, describing:; how and why it takes place; who carries it out; who funds it; how it is designed; how it relates to policy and practice. They look at the challenges inherent in this work, such as balancing the voice of the researcher with that of disabled participants and clarifying roles within research projects, and explore how it can become more inclusive and empowering. Providing valuable information and advice to researchers, policy makers and students as well as other health and social care professionals, this book presents a comprehensive examination of participative research in social care.
Author(s): Jan Walmsley, Kelley Johnson
Edition: 1
Year: 2003
Language: English
Pages: 256
Inclusive Research with People with Learning Disabilities......Page 5
Contents......Page 7
Acknowledgements......Page 9
Introduction: Reputable? Helpful?…and Inclusive?......Page 11
Part 1 Describing the Past......Page 23
1 Of Shoes and Ships and Sealing Wax and… Inclusive Research: Or Where Did It All Start?......Page 25
2 Normalizing, Emancipating and Making a Stand......Page 46
3 Inclusive Research in Learning Disability: Beginnings......Page 63
4 Knowing the Elephant......Page 81
Part 2 Exploring the Research Process......Page 95
5 Nothing About Us Without Us Good Times Bad Times......Page 97
6 Living Safer Sexual Lives: Making Research Work......Page 111
7 What Matters to People with Learning Disabilities?......Page 128
8 Managing Inclusive Research......Page 148
9 Who Uses it and How?......Page 166
10 What Has Been Achieved?......Page 185
Part 3 Beyond Rhetoric to New Realities......Page 191
11 Beyond Rhetoric…......Page 193
12 …To New Realities......Page 209
Conclusion: Why Do It?......Page 222
References......Page 226
Subject Index......Page 246
Author Index......Page 255