This key collection brings together a selection of papers commissioned and published by the Cardiff Centre for Ethics, Law & Society. It incorporates contributions from a group of international experts along with a selection of short opinion pieces written in response to specific ethical issues. The collection addresses issues arising in biomedical and medical ethics ranging from assisted reproductive technologies to the role of clinical ethics committees. It examines broader societal issues with particular emphasis on sustainability and the environment and also focuses on issues of human rights in current global contexts. The contributors collect responses to issues arising from high profile cases such as the legitimacy of war in Iraq to physician-related suicide. The volume will provide a valuable resource for practitioners and academics with an interest in ethics across a range of disciplines.
Author(s): Jennifer Gunning, Søren Holm
Publisher: Routledge
Year: 2018
Language: English
Pages: 1807
City: London
Volume Cover
Volume 1
Cover
Half Title
Title
Copyright
Contents
List of Figures and Table
List of Contributors
Acknowledgement
List of Abbreviations
INTRODUCTION
1 Introduction
PART I: BIOETHICS
2 Therapeutic and Reproductive Cloning – A Scientific Perspective
3 Stem Cells, Patents and Ethics
4 Recent Issues in Assisted Reproduction: Evolutions in Science, Law and Ethics
5 Why do Research on Human Brains?
6 Bioethics in Europe
7 A Penny for Your Thoughts – Ethics in Sponsored Research
8 Ethical Issues in Evidence-Based Medicine
9 Health Economics and Access to Treatment
10 Clinical Ethics Committees in Europe: Assistance in Medical Decisions, Fora for Democratic Debates or Bodies to Monitor Basic Rights?
11 Human Dignity and the UNESCO Declaration on the Human Genome
PART II: ETHICS AND SOCIETY
12: Theft of DNA: Do We Need a New Criminal Offence?
13 Environmental Ethics, Environmental Problems and the Ethics of Science
14 Ecological Modernisation and the Precautionary Principle
15 Agri-Culture: Some Principles and Lessons for Sustainability
16 Applying the Notion of Sustainability – Dilemmas and the Need for Dialogue
17 GM Resistant: Europe and the WTO Panel Dispute on Biotech Products
18 Food Ethics
19 The Ethics of Journalism: A Summing-up for Lord Hutton
20 In Search of Ethical Business Leadership: Time to Mix Our Metaphors?
21 Only Connect – Broadband Provision and Social Inclusion
PART III: HUMAN RIGHTS
22 Human Rights – What Hope? Human Dignity – What Scope?
23 Harmonising Human Rights in Europe
24 Ugly, Deformed and Grubby: The Common Law and Human Rights
25 Holding Multinational Corporations Accountable for Breaches of Human Rights
PART IV: COMMENTARIES
26 The Health Professional and the Dying Patient
27 Legitimate Authority, Just Cause, and the Decision to Invade Iraq
28 Severe Acute Respiratory Syndrome (SARS) – An Odd New Challenge
29 Designing Donors
30 Separating Conjoined Twins: The Case of Ladan and Laleh Bijani
31 Brain Research and Neuroethics
32 Who has the Right to Determine the Fate of their Embryos?
33 Internet Governance
Index
Volume 2
Cover
Half Title
Title
Copyright
Contents
List of Figures and Tables
List of Contributors
Acknowledgement
List of abbreviations
1 Introduction
PART I: BIOETHICS
2 Human Tissue Research, Individual Rights and Bio-banks
3 Umbilical Cord Cell Banking: A Surprisingly Controversial Issue
4 Assisted Reproduction in the Republic of Ireland – A Legal Quagmire
5 Practical Ethics in Search of a Toolbox: Ethics of Science and Technology at the Crossroads
6 'Up in the Sky': Human and Social Sciences' Responses to Genetics
7 Family Decision Making – A Victim to the Hegemony of Autonomy?
8 Avon Longitudinal Study of Parents and Children (ALSPAC): Ethical Process
PART II: ETHICS AND SOCIETY
9 Restrictive or Engaging: Redefining Public Health Promotion
10 Enemies of Mankind
11 Ethical Challenges in the Conservation of Cultural Material
12 Farming and Food Research: Participation and the Public Good
13 Do Mention the War: Children and Media Coverage of Traumatic Events
14 Reducing Rights in the Name of Convention Compliance: Mental Health Law Reform and the New Human Rights Agenda
15 The Impact of Leadership on Public Policy in Africa: Problems and Opportunities
16 The Child and Family Policy Divide
17 Children and Family Breakdown
18 The Impact of Discrimination on Children
19 Building Resilience: Helping Vulnerable Children Cope
PART III: BUSINESS AND PROFESSIONAL ETHICS
20 The International Financial War against Terrorism: Myths and Reality
21 Ethics and Advertising
22 Self-Regulation and the Market for Legal Services
23 Corporate Responsibility for Children's Diets
24 Do Toy Companies Really Care about Children? Evaluating the Ethics of the Toy Industry
PART IV: COMMENTARIES
25 A Taste of the Orange Revolution: Ukraine and the Spirit of Constitutionalism
26 Seroxat – The Power of the Pharmaceutical Industry. The Case for a Better Way to Research, License and Regulate Medicines
27 Doha Developments: The July Package and Agriculture
28 Lawyers and Ethicists Should be Careful When Talking About the Permissibility of Torture
29 You Pays Your Money and You Takes Your Choice?
30 Life After Death: My Life After a Heart and Lung Transplant
31 The Human Rights Act: Is it Working?
32 Fair Trials, Ethics and Saddam Hussein's Trial
33 Expert Evidence on Trial
34 Bhopal: The Disaster Continues
Index
Volume 3
Cover
Half Title
Title
Copyright
Contents
List of Figures and Tables
List of Contributors
Acknowledgements
List of Abbreviations
INTRODUCTION
1 Introduction
PART I: BIOETHICS
2 On Waving the Embryos Banner: Embryonic Stem Cell Research and Moral Reasoning in Recent Reports from the USA, the Netherlands and France
3 Bioethics, Procedural Ethics, and Misrepresentation in the Stem Cell Debate
4 Ethical, Legal and Social Issues Related to Cell Therapy
5 Boy or Girl: Should Parents be Allowed to Choose the Sex of Their Children?
6 Bad Science Equals Poor, Not Necessarily Bad, Ethics
PART II: ETHICS AND SOCIETY
7 Dignity and Older Europeans
8 Guidelines for Embryo Donation for Reproductive Purposes in New Zealand: A Child/Family Approach
9 Assisted Reproduction and the Welfare of the Child
10 Body Immortal
11 Masculinity, Reproductivity and Law
12 Being Natural: An Exploration of the Natural in the Writings of Hans Christian Andersen
PART III: BUSINESS AND PROFESSIONAL ETHICS
13 Genes for Sale: Ethical Reflections on Donors' Proprietary Rights in Human Genetic Derivatives
14 4x4 Cars and the City: What are the Limits of Vehicle Manufacturer Responsibility?
15 From 'Jim Crow' to 'John Doe': Reparations, Corporate Liability and the Limits of Private Law
16 A Crisis of Professional Self-regulation: The Example of the Solicitors' Profession
PART IV: COMMENTARIES
17 The National DNA Database: Why No Public Debate?
18 Can the Cell Nuclear Replacement Technique be Used to Overcome Genetic Disease?
19 The Human Condition and the Pursuit of Perfection in Human Reproduction
20 Drug Testing and the Use of Healthy Volunteers
21 The Assisted Dying Bill: 'Death Tourism' and European Law
22 Could Do Better? Hegemony and Freedom in Cyberspace
23 Treatment in Time of Sudden Infectious Pandemic: The Need for a Proactive, Practical, Proportionate, Prophylactic Ethical Response to the Threat of Pandemic Influenza
24 Toy Stories, Horror Stories and Fairy Tales
25 Herceptin in the Adjuvant Treatment of Breast Cancer
26 End of Life Decision-making: The Implications of the Court of Appeal Decision in Burke v General Medical Council
27 Does Nanotechnology Require a New 'Nanoethics'?
28 Medically Assisted Procreation in Italy: The Referendum and the Roman Catholic Church
29 From Fridge Mountains to Food Mountains? Tackling the UK Food Waste Problem
30 A Gain for Autonomy and Reproductive Choice: The Issue of 'Saviour Siblings' Resolved
31 Human Rights and Gypsies: It is Time for a Rethink
32 Forgetting to be Nice: The National Institute for Clinical Excellence's Preliminary Recommendations Concerning Drugs for the Treatment of Alzheimer's Disease
Index
Volume 4
Cover
Half Title
Title
Copyright
Contents
List of Figures and Tables
List of Contributors
Acknowledgment
List of Abbreviations
INTRODUCTION
1 Introduction
PART I: ETHICAL ISSUES IN AGRICULTURE AND FOOD
2 Modern Farming Practices and Animal Welfare
3 Animal Integrity in Modern Farming
4 CAP Reforms: Effects on Agriculture and Environment
5 The Ethics of Animal Cloning
6 European Food Regulation and Accountability: The Interplay of Influences Shaping the New Regulatory Terrain
7 Globalization and Sustainability in Agriculture: Role of Law and Ethics
8 Production Economics, Markets and Assurance Programmes for Farm Animal Welfare
PART II: BIOETHICS
9 Puzzle-Solving for Fun and Profit: The Abusive Potential of Non-Genetic Health Data in Epidemiological Biobanks
10 The Ethical Topography of Research Biobanking
11 Fuzzy Law Encountering Life, Death, and Morality: A Report on Nine Clinical Ethics Committees' Legal Considerations
12 Bioethics, Biopower and the Post-Genomic Challenge
13 What's Wrong with Genetic Inequality?
14 Public and Private Interests in the Genomic Era: A Pluralist Approach
15 Challenging Science: Public Views of Personalized Medicine
16 Therapeutic Cloning and the Protection of Embryonic Life: Different Approaches, Different Levels of Protection – A View from the United Kingdom
17 Informed Consent, Trust and Virtue in Czech Medicine
PART III: ETHICS AND SOCIETY
18 America and the Case for Just War Against Iraq
19 Childhood in Conflict: Can the Real Child Soldier Please Stand Up?
20 Ethical Dimensions of Youth Justice
21 Reproductive Technologies and the Question of the Child's Future Freedom
22 Ethics, Paediatric Doping and the Limitations of Gillick Consent
23 What Protection Do Consumers Require in the Information Economy?
24 Justifying Claims of State Responsibility to Meet the Needs of Irregular Migrants: The Problem with Proceeding from Human Rights
25 Women Workers in the Global Economy: A Feminist Critique of the Core Labour Standards
26 Allocating Healthcare Resources: The Role of Personal Responsibility
27 The Responsibilities of Healthcare Professionals in Crisis Situations
PART IV: COMMENTARIES
28 Case Commentary: Evans v The United Kingdom
29 The Incident of the Container Ship MSC Napoli: Is it an Intractable Problem?
30 The (Not So) Great Escape: The Legal and Moral Responsibility for the Foot and Mouth Outbreak 2007
31 Ethics and the Advent of the Holy Grail of Stem Cell Research
Index
Volume 5
Cover
Half Title
Dedication
Title
Copyright
Contents
List of Contributors
List of Abbreviations
INTRODUCTION
1 Introduction
2 Steering through choppy waters – a tribute to the bioethical nous of Jennifer (Jenny) Gunning 1944–2010, BSc 1st Class (Open University), PhD (Birkbeck)
THEME 1 - ETHICS OF CARE
3 The Ethics of Care: Resetting our Social 'Operating System' after Rational Man 2.0 and Sorting Out What we Care About
4 Care as Cornucopia: A Critical Ethics of Care and Fantasies of Security in the Neoliberal Affective Economy
5 Ethics and Choice in Healthcare: The Case of Public v. Private Cord Blood Banking
6 Still Gendered After All This Time: Care and Autonomy in Child Custody Debates
7 Eradicating the Badge of Inferiority Associated with Caregiving Men: Masculinity, Vulnerability and the Global Employment Context
THEME 2 - THEORIZING THE ETHICAL
8 Theorizing the Ethical: Ethics as a Shared Means to a Shared End
9 Why Applied Ethics?
10 Criminalization and the Moral Responsibility for Sexual Transmission of HIV
11 Re-Thinking the Ethical: Everyday Shifts of Care in Biogerontology
THEME 3 – BODY POLITICS
12 Body Politics
13 Informed Choice not Informed Consent: Shifting Focus and Protecting Interests
14 Informed Choice over Informed Consent: Cracking the Old Chesternut?
15 Wanted Dead or Alive: Organ Donation and Limitations on Surrogate Consent for Non-competent Living Donors
16 Swept Under the Carpet: Why Surrogacy Law Needs Urgent Review
17 Screening Applicants for Assisted Reproduction: Complexities and Issues
THEME 4 – GOVERNANCE
18 Governance: Creating an Ethical Architecture
19 Human Tissue: A Common Regulatory Framework for its Procurement, Storage and Use
20 Moving Human Embryonic Stem Cells Internationally: Near-future Challenges for the UK Stem Cell Bank and American Collaborators
21 Confidentiality and the Family Courts: Ethical Dilemmas for Health and Social Work Practice
Index