This book, written by academics across a range of disciplines, including healthcare and social sciences discusses the increasing use of the arts in healthcare research, which often stems from the recognition that for some topics of investigation, or when dealing with sensitive issues, the usual qualitative or quantitative paradigms are not appropriate. While there is undoubtedly a place for such approaches, arts-based research paradigms (ABR) offers, not only additional study and data-collection tools, but also provides a new and enjoyable experience for those involved.
The use of the arts as a medium to improve health and wellbeing was well documented by the World Health Organisation (WHO) in 2019, with over 3,000 studies conducted around the globe on the value of the arts in the prevention of ill health and promotion of health across the life span. This book examines how the arts, in a variety of forms, can be used by those working directly in healthcare settings as well as those involved in research across all health or patient settings. Covering a range of ABR genres, including literature (such as narrative and poetic inquiry); performance (music, dance, play building); visual arts (drawing and painting, collage, installation art, comics); and audio-visual and multimethod approaches, this user- friendly book will appeal to nurses, researchers in nursing and allied healthcare professions, as well professionals in the social sciences, psychosociology, psychology, literature and arts.
Author(s): Kathryn Hinsliff-Smith, Julie McGarry, Parveen Ali
Publisher: Springer
Year: 2022
Language: English
Pages: 168
City: Cham
Contents
Introduction
1: Arts-Based Research as a Radical Methodology Within Healthcare
1.1 Introduction
1.2 Systematic Reviews
1.3 Single Case Research
1.4 Summary
1.5 Learning Opportunity
References
2: “It Is …, It Stands for …, It Shows …”: Arts-Based Representations in Data Generation and Analysis
2.1 Introduction
2.2 Research Context
2.2.1 The “I” in Fibromyalgia: The Construction of Academic Identity Under the Influence of Fibromyalgia
2.2.2 Ableism in Academia: Developing Institutional Approaches to Inclusivity
2.3 Methodological Choices and Theoretical Underpinnings
2.4 From Arts-Based Data Collection to Creative Analysis
2.5 Practical Considerations for Using Arts-Based Approaches in Research
2.6 Chapter Summary
2.7 Learning Opportunity
References
3: Proximity, Accessibility, Sensitivity, Voice: The Possibilities for Arts-Based Approaches in Healthcare
3.1 Traditional Research Paradigms
3.2 Possible Limitations of Traditional Approaches
3.3 The Voice of the Individual
3.4 ‘Unlocking Stories’: Older Women’s Experiences of Domestic Abuse
3.5 Our Overarching Approach to the Workshops
3.6 Letting Go …
3.7 Creating a Survivor: The Use of ‘Persona’
3.8 Cut Up Poem
3.9 Clay Models
3.10 The Individual Poems
3.11 Chapter Summary and Considerations for the Researcher
3.12 Reflective Exercise
References
4: Use of Personas and Participative Methods When Researching with Hard-to-Reach Groups
4.1 Introduction
4.2 Personas and Scenarios
4.3 What Is a Persona Based on?
4.4 What Shapes a Persona?
4.5 A Qualitative Research Method and Narrative Technique
4.6 Conclusion
References
5: Photo-Elicitation: Unleashing Imagery in Healthcare Research
5.1 Introduction
5.2 Theoretical and Methodological Considerations
5.3 Incorporating Photo-Elicitation in Health Research
5.4 Benefits of Photo-Elicitation for Researchers
5.5 Benefits of Photo-Elicitation for Research Participants
5.6 Challenges and Limitations of Photo-Elicitation
5.7 Ethical Considerations
5.8 Conclusions
References
6: A ‘Girls’ Illness?’ Using Narratives of Eating Disorders in Men and Boys in Healthcare Education and Research
6.1 Arts-Based Approaches and Eating Disorder Research: A New Generation of Intervention
6.2 Using Personal Narratives of Illness to Advance Healthcare
6.3 Men Get Eating Disorders Too
6.4 Close Reading 1: ‘I Didn’t Have the Vocab’
6.5 Close Reading 2: Diary of a Boy with Anorexia
6.6 Close Reading 3: ‘A Story to Tell’: Text and Photography
6.7 Conclusion
References
7: Creative Interventions, Imaginative Research: Using Mixed Methods to Study the Arts and Dementia
7.1 Introduction
7.2 Background to the Arts and Dementia
7.2.1 Meeting the Needs of People Living with Dementia
7.2.2 Making the Case for the Arts and Dementia
7.2.3 Situating the Arts and Dementia Research Field
7.3 Challenges with Evidence Base, Methods and Methodology
7.3.1 Scientific (Positivist) Methods
7.3.2 Subjective (Constructivist) Methods
7.3.3 Creative Interventions Need Creative Research
7.4 Case Study Examples of Mixed-Methods Arts and Dementia Research and Practice
7.4.1 Dementia and Imagination
7.4.1.1 Learning Summary
7.4.2 Created Out of Mind
7.4.2.1 Learning Summary
7.4.3 Mark Making
7.4.3.1 Learning Summary
7.5 A Mixed-Methods Theoretical Framework for the Arts and Dementia
7.5.1 A Taxonomy of Arts Interventions for People with Dementia
7.5.1.1 Learning Summary
7.6 Summary
References
8: Hand-Drawn Infographics: A Tool for Reflection and Creativity in Healthcare Research and Beyond
8.1 Introduction
8.2 Background
8.2.1 My Practice
8.2.2 Definitions
8.2.3 Categories
8.2.4 Visual Communication: Research Context
8.2.5 Benefits for Researchers: General
8.2.6 Description of Session
8.3 Background: Theory and Benefits
8.3.1 Constructionism
8.3.2 Everyday Creativity
8.3.3 Multisensory Learning
8.3.4 Visual Literacy
8.3.5 Reflection
8.3.6 Creative Thinking
8.3.7 Public Engagement
8.3.8 Peer Learning
8.4 Examples
8.5 Summary
8.6 Learning Opportunity: Activities Using Hand-Drawn Infographics
8.6.1 Workshop Activity 1: Critique of Infographic Examples
8.6.2 Workshop Activity 2: Visualising Your Research with Hand-Drawn Infographics
8.6.3 Workshop Activity 3: Developing Digital Infographics
8.6.4 Moving Hands-On Workshops Online
References
9: Use of Writing Letters and Other Literature Forms to Capture Experiences of Research Participants
9.1 Background to the Contributing Research Team
9.2 What Is Gender-Based Violence (GBV)?
9.3 Use of Arts-Based Approaches in the South African Context
9.4 Why Letters and What Purpose Can They Serve Within Healthcare Research?
9.4.1 From Silence to Voice: Understanding the Experience and Healthcare Support Needs of Women in South Africa Who Have Experienced Sexual Violence
9.5 Analysing Letters in Research
9.6 Chapter Conclusion
References
10: Collage: An Often-Neglected Art Form for Use in Health Research—A Canadian Exemplar
10.1 Introduction
10.2 Background on Arts-Based Inquiry in Family Caregiving and Care in the Home
10.3 Collage as Arts-Based Inquiry
10.4 Study Exemplar: Collage as an Arts-Based Intervention in Family Caregiving
10.5 Knowledge Translation Events
10.5.1 World Café
10.5.2 Conference Art Show
10.5.3 Public Art Gallery Showing
10.6 Discussion/Challenges
10.7 Application to Practice and Policy
10.8 Summary
10.9 Reflective Exercise
10.9.1 Supplies
10.9.2 Process
References
11: Lessons Learnt and Way Forward
11.1 Arts and Research
11.2 Types of Arts-Based Research
11.3 Researcher Role
11.4 Ethical Considerations
11.4.1 Plan Clarity
11.4.2 Confidentiality and Anonymity
11.4.3 Informed Consent
11.4.4 Risk of Harm
11.5 Practical Considerations for Using Arts-Based Approaches in Research
11.5.1 Arts-Based Approaches Are Not Talked About That Much
11.5.2 Lack of Clear Guidelines on How to Adopt Arts in Research
11.5.3 What Is an Appropriate Form for Data Collection and Analysis?
11.5.4 Which Specific Form of Art Should Be Used?
11.6 Ownership of Artefacts
11.7 Financial Cost
References
